Dealing with new-old things...

So I've decided that maybe blogging will help me with some of my anxiety and mood swings due to the many frustrations of my seizures. I can't say epilepsy, because the closest I've come to actually being diagnosed was "borderline epileptic". I may end up on other subjects, but I need somewhere to get this out, and this will also give me a chance to keep out of town family members up to date on what's going on with my head, quite literally, lol.... I will warn you, I do tend to joke about it, but it's the only thing that tends to keep me sane. If you can't handle it, politely point your mouse to the "x" in the top right corner of your screen and make an exit.

Let's start with the beginning point, or what for sure set all of this in motion. As I have read online about different things, there is a chance that I have actually been having seizures way longer than what we think... Before I go off on that tangent, here we go.
We're going back nearly three years ago to September 11, 2009. Hubs and I are in bed, and for me, it's like I went to sleep and woke up in an ambulance. Imagine my surprise terror to wake up in the back of an ambulance. The paramedic informed me that I had just had a seizure. What an interesting experience, to say the least. I had a catscan, and was discharged with instructions to see a primary care doctor ASAP. Later I found out that my husband was instructed to search our house for drugs. Apparently the doctor here didn't think it was possible for epileptic episodes to randomly come from nowhere at the age of 22. Those of you who know me well, know the thought of me using drugs is ridiculous. Always nice to find out that your local ER staff believes that you're a druggie when you don't touch the stuff.  For those of you that have never had a seizure, let me tell you what it's like, or at least for me. I believe that the occurrences I am talking about today are grand-mal, although my most recent primary care doctor (who admitted neurology is not a strong point) says they are not due to me not losing bladder control (Sorry lady, I don't like to pee myself, lol). Anyhow, for me, it has gone something like this.... Fall asleep (or so you think), wake up in the back of an ambulance groggy and with most of the ride being hit-or-miss as far as remembering it goes, being confused and finding it hard to concentrate for quite a while, and then when you finally somewhat gather your senses, getting doped up with the anti-convulsant of the doctor's choice (which pretty much puts you back into the groggy state, I guess I might as well say that that state is like being drunk, many people can relate), and then the next day feeling like you can't move because you're so sore... Although I do have to say the more seizures I've had, the less I feel it the next day...
So we went to see the primary care doctor. He, of course, sent me right off to the neurologist. She did a sleep deprived EEG, and came up with an odd conclusion, or at least to me it seems that way. According to her findings with said EEG, I am borderline epileptic. She said that I am more likely than Average Joe to have another seizure, but I am just as likely to never have another seizure. (Which I did, three more to date, as a matter of fact.) At which point she also told me that she would leave the choice of whether or not medication up to me. Being the mother to two young daughters, one nearly two and the other nearly four months at that time, plus working full time, hubby and I decided that it would be best if I took the medicine. It made the two of us feel much more comfortable leaving our girls alone with me. A month or so later, I couldn't remember my youngest daughter's birthday. I broke down into tears, and we decided maybe the medicine wasn't for me, that we'd take our chances since we were told I might never have another one. Which medicine did I take? To be honest, I don't remember, and I haven't went through all of the medicines to find out which one it was. Hubby said it looked like candy, and honestly it kind of did.
For nearly three years, I was seizure free. Then on July 12/13, hubs and I laid down to sleep, and guess what happened, I came to in the back of an ambulance. I was discharged from the ER and we went home and crawled into bed. Once again, I came to in the back of an ambulance. Three years without a seizure, and within hours I had two. It's crazy how suddenly this has changed for me. That night/morning I had another catscan, was given medication via an IV, and told to get my behind back to a neurologist. I developed a headache, very common to have after seizures, or so I've read...
Three weeks to the night later, August 2, I had yet another seizure. This time, I was given a prescription for Keppra, 500mg twice a day, along with being given medication via IV. I slept most of the weekend afterwards thanks to my new prescription. Literally my weekend went wake up, take medicine, sleep, wake up, take medicine, sleep. What little time I was I awake, I was stumbling around and acting drunk. Thank you medicine. I took a week off from work per dear hubby's orders...
I did get in to see a primary care doctor during this time. This would be the one I mentioned earlier, the one who said neurology is not her strong point. She seems to believe that as long as the medicine is keeping me from having seizures (Which, knock on wood, two weeks later and I have yet to have another seizure), that I'm fine without a neurologist. There's just this small problem where I've had a headache for a month, and the Keppra is supposed to take care of that. It's just that it, well, it isn't. I've been taking the medicine for two weeks and my headache has shown zero sign of letting up. She told me that if my headache didn't go away or if I felt that I should go to the neurologist, she'd be happy to give me the referral. Nearly two weeks later, she hasn't given me the requested referral. I have found out that the local urgent care center can give me the referral I need, assuming the doctor feels it's necessary. I just don't see any normal doctor not wanting someone in my position to go see a neurologist. So I'm currently very frustrated with her for not doing what she said she'd do. The plan is that on hubby's next off day, we will be going to Urgent Care and, fingers crossed, get the needed referral.
This pretty much gets you caught up, and since it's already a lengthy post, I will leave it at this.